Woman who suffers from condition that causes saggy skin has become a body positive Instagram star

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Woman who suffers from condition that causes saggy skin has become a body positive Instagram star

A woman who suffers from a condition that leaves her with saggy skin has become a champion of body positivity on Instagram.

Sara Geurts, a 28-year-old model, has an extreme form of a connective tissue disorder Ehlers Danlos Syndrome (EDS) called Dermatosparaxis EDS.

It that means her body is deficient in collagen, causing her skin to notably sag, as well as leaving her bed-bound and unable to eat.

“I just wanted to cover it up. I didn’t want anyone asking me about it. I wore jeans and sweaters at 90-degree weather,” she told Metro of how her body confidence took a dive when she was a teenager.

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I'm soo soo excited to share with everyone our latest video with Barcroft TV! *LINK IN BIO* In just 1 hr it's been viewed over half a million times on Facebook & has almost 200k on YouTube! 😍🙌😍 With my health in such a fragile state this video was an update not only on what we've been up too but as well as my current health situation & GoFundMe. Unfortunately the past few months have been immensely frustrating and hard specifically with my Ehlers Danlos and its symptoms. The latest news we've received has been that of my MRI & Harris measurement of my neck. My tests results revealed that my measurements are extremely drastic with my neck possibly not being able to support the weight of my head. I am now being referred to East coast specialist's for further review, most likely leading to surgeries or fusions.. My testing for Gastroparesis and Mast Cell will be done later this month so fingers are crossed for good news..! I wanna take a second and give a huge shoutout to all my friends and family that were able to be a part of this video as it means so much to Bri and I during this hard time… I love you all so so much and please watch & share the video as well as the GoFundMe!! Lovee you all and will keep you updated! ❤💓❤ • • • • • Photographer 📸 – @brianaberglund MUA – @lunaglow.makeup • • • • • • • • • • • #weekend #friday #feature #photography #photoshoot #nofilter #influencer #asian #love #ehlersdanlossyndrome #inmyskiniwin #loveyourbody #loveyourlines #bodylove #bodypositive #selflove #beyou #doyou #bebeautiful #blessed #inspire #embrace #beauty #sorrynotsorry #perfectlyimperfect #inspire #model #real #goodvibesonly #perfectlyimperfect #thisisme #beautiful

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“I refused go to the pool; didn’t want to be in a swimsuit all that type of stuff, just because I knew people would look and people would wonder.”

Sara, from Minnesota in the United States, says she first became aware of her hyper-stretchy skin when she was aged six or seven, and was diagnosed between the ages of eight and ten.

“All the kids in the neighbourhood thought I was so cool, because I had the stretchy skin,” she recalled.

But it is only in the last few years in her twenties that she has once again begun to love her own body.

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"She distanced herself to save herself." • • My recent sickness and journey with Ehlers Danlos Syndrome has been really hard on me, emotionally and physically…After a very painful MRI last week we are now worried about slipping disk in my neck not being able to support my head weight as well as numerous upcoming appointments with specialist for my Gastroparesis, MALS & POTS. I also have now found I will not be able to return to my regular job even after we are able to complete these tests..which for someone who has worked since 14 has been hard to grasp.. I apologize for my absence and hope you are able to understand it's a day by day process for me and your support and love means so much… I'm trying to respark the flame of my vision and inspirations and not fall into a complete negative state but find these recents events to be taking there toll… BUT I will not give up. I will try my hardest to remain positive and strive today and everyday to do as much as I can when I can, and to be patient, vulnerable and love my body in the times and events I can't… this is something I am really working on and is all so new to me.. I am hopeful during this time I will remain positive and there will have been some good… answers provided for long awaited questions…this too shall pass..and thank you all again for your neverending uplifting love and support.. yall keep me going & special shoutout and love to mama @sberglund3 whose been there through all of this… and dealing with my emotional self..love you so much and I will keep everyone as updated as possible. Love you all. 💕💋 • • Photographer 📸 – @brianaberglund MUA – @lunaglow.makeup • • • • • • • • • • • #womancrushwednesday #wcw #f21xme #photoshoot #nofilter #influencer #asian #love #ehlersdanlossyndrome #effyourbeautystandards #inmyskiniwin #loveyourbody #loveyourlines #bodylove #bodypositive #selflove #beyou #doyou #bebeautiful #blessed #inspire #embrace #beauty #sorrynotsorry #perfectlyimperfect #model #inspire #model #real #goodvibesonly #perfectlyimperfect #thisisme #beautiful

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Sara decided to raise awareness of EDS to help those for whom the disorder is invisible.

“I’m kind of the rare case where I am visible,” she added of the plus-side of her saggy skin.

“And so that’s why a lot of people out there aren’t getting the treatment that they need because the doctors can’t physically see anything wrong with them.”

She started to share images of her body on Instagram and has gained 78.7k followers.

The body positivity star, who credits her girlfriend Bri for helping support her during a “fragile” last 12 months of ill health, regularly keeps her fans updated with her progress.

Sara, who also has chronic fatigue syndrome, recently revealed that tests have shown her neck might not soon be able to support the weight of her head, and money is being raised on a Go Fund Me page for her treatment.

Source: yahoo.com

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